WELCOME TO MY LIFE ...
MY BEAUTIFUL, COMPLICATED LIFE.
I was born with spinal muscular atrophy (SMA), a rare, degenerative disorder. Having limited mobility, I've been in
a power wheelchair since I was three years old.
To say that my life is unusual is an understatement and I feel a growing need to bring awareness to chronic illness. Many people don't understand what my life is like and what obstacles I face everyday, mostly because up until now I've been too scared to let people in.
But now I am ready to share pieces of my life with you. I want to break down barriers and let people into my life, a life filled with joy and laughter but also heartache. I invite you to laugh, scream, cry, and cheer along with me as I try to thrive with SMA Type II. Enjoy!
"Hope is what you’ll end up with
when fear isn’t calling the shots anymore.”